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OUR VISION:

Finding solutions for infant myocarditis

OUR MISSION:

To improve awareness and the knowledge base around the prevention and treatment of myocarditis in infants

 

To provide information, counselling and practical assistance to those affected by infant myocarditis

Our key focus areas

1

To create awareness around infant myocarditis, and closely related conditions, in the medical community and among parents through the development of educational material

2

To establish counselling and resource support for families whose children are affected by infant myocarditis

3

To raise funds for further research into myocarditis, especially in neonates and
infants up to six months old

In search of solutions for infant myocarditis

Myocarditis, which is usually caused by a virus, is an inflammation of the heart muscle (myocardium). As it affects the heart muscle and the heart's electrical system, it reduces the heart's ability to pump, causing rapid or abnormal heart rhythms (arrhythmias).

In severe cases, the extent to which myocarditis weakens the heart affects its ability to supply the rest of the body with oxygenated blood.

Myocarditis is a fairly rare disorder that affects males more often than females. Because it is rare, there is limited knowledge around the diagnosis and effective treatment options for this disease, especially in neonates.

The Conor James Foundation is a private, non-profit organisation that aims to help fund new and innovative local research that looks for ways in which to prevent and treat myocarditis, especially in paediatric patients.

 

The Conor James Foundation also strives to create awareness and provide education on this rare disease, in addition to offering counselling and other support to families who have been affected by the disease.

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© Copyright 2020

Conor James Foundation Trust 

IT000501/2018(G)

PBO number: 930065044

NPO number: 226-532

DISCLAIMER: The information on this website, including text, graphics, images and information is for general information purposes only. It is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment.

 

The information contained in this website is not intended to endorse or recommend any particular type of medical treatment. Should any reader have any health care related questions, please consult your physician or healthcare provider. No information contained in this website should be used by any reader to disregard medical and/or health related advice.

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