OUR VISION:
Finding solutions for infant myocarditis
OUR MISSION:
To improve awareness and the knowledge base around the prevention and treatment of myocarditis in infants
To provide information, counselling and practical assistance to those affected by infant myocarditis
Our key focus areas
1
To create awareness around infant myocarditis, and closely related conditions, in the medical community and among parents through the development of educational material
2
To establish counselling and resource support for families whose children are affected by infant myocarditis
3
To raise funds for further research into myocarditis, especially in neonates and
infants up to six months old
In search of solutions for infant myocarditis
Myocarditis, which is usually caused by a virus, is an inflammation of the heart muscle (myocardium). As it affects the heart muscle and the heart's electrical system, it reduces the heart's ability to pump, causing rapid or abnormal heart rhythms (arrhythmias).
In severe cases, the extent to which myocarditis weakens the heart affects its ability to supply the rest of the body with oxygenated blood.
Myocarditis is a fairly rare disorder that affects males more often than females. Because it is rare, there is limited knowledge around the diagnosis and effective treatment options for this disease, especially in neonates.
The Conor James Foundation is a private, non-profit organisation that aims to help fund new and innovative local research that looks for ways in which to prevent and treat myocarditis, especially in paediatric patients.
The Conor James Foundation also strives to create awareness and provide education on this rare disease, in addition to offering counselling and other support to families who have been affected by the disease.
